0-9723711-0-9 Surviving Dystonia

Description:

Story of a little boy who develops a rare disease at the age of six called dystonia musculorum deformans also know as early on-set generalized dystonia. He gradually loses control of his legs making walking difficult. He family is poor so they have to go to a special clinic for the poor. No one can understand what is wrong with him. He is misdiognosed as faking illness to get attention by a doctor and for six and a half years he has to hide his illness as best he can and is forced to become an adult at the age of 11. Finally properly diagnosed correctly at almost 18 years of age.

subjects: Dystonia